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kylah_222 wrote:
I can't even tell you how much I love this. Perfect.
10/6/2008 12:51 PM CDT

heather3boys wrote:
"I don't care if it's a boy or a girl, as long as it's healthy." That's the one that gets me the most, like a knife, that one is...

We know our SpEd kids are amazing and never to be pitied. I know I'm grateful for my sons abilities to teach me how to be a better person.

Thanks for writing!
10/6/2008 1:12 PM CDT

nursetara wrote:
love it christy, it also means letting go of what we thought was going to be. The letting go is never a bad thing, just opens you for things maybe you were not expecting but help you grow and learn something anyway.
10/6/2008 4:56 PM CDT

Elias's Dad wrote:
I had this horrible thought the other day as Elias's nose began to run and his cough cracked deep in his lungs....
Please don't get pneumonia, I don't know if I can handle the hospital right now too.
But I know with Christy by my side we could, because together we have found strength.
Instead, Elias is at school today, then off to daycare.
Thank Goodness.
10/6/2008 5:24 PM CDT

Noel Dennehy wrote:
All I can think about when I read what you write is that you are the perfect parent for Elias and how lucky those children are, where you are working, to have you.
10/6/2008 6:28 PM CDT

Duffy M. wrote:
As an aunt to a child with Ds, I know my family can relate. I get very annoyed when I hear from a friend that another friend is pregnant, but waiting for test results before she tells anyone. Then when she decides to tell people she says she's having a healthy baby boy. Well my sister did the tests and could still say that she was having a healthy baby girl... with Down syndrome. It bugs me because I don't want to admit to myself that my friends that I was so close to are vastly different in our views. Your posts always make me think! Good luck with school.
10/6/2008 8:42 PM CDT

pili&gavin&girls wrote:
we love all of you...more than bacon!!!!I hope the universe expands enough for us to see all of you soon. Lots and lots of beautiful thoughts to you.
10/7/2008 12:30 AM CDT

Following Elias wrote:
I love all your comments--thank you thank you thank you! They keep me going when life feels overloaded.

Yes, Tara, it sure does mean letting go...which can open all kinds of new doors.

And Duffy, I recently had a friend tell me about her friend who "had" to terminate her baby because the test came back positive for Ds and I remember feeling surprised that she framed it as if there was no choice because I too forget how altered my worldview is from many of my friends. Thanks for sharing and making me think:)

And Nick--Elias's Dad-- I couldn't do any of this without you!
10/7/2008 10:31 PM CDT

Niksmother wrote:
Great post!
10/8/2008 10:07 PM CDT

Nelba wrote:
Thanks for this reminder of how our children redefine our lives. A friend of mine once said that we didn't realize how much our lives changed because of Loren. She said it like it was a bad thing. Another friend who had a child with CP said the exact same words. There was approval in her voice.
10/11/2008 2:28 AM CDT

mamacantik wrote:
I love this post. What rings most true for me is the constant surprise and the "Did you see what he just did?!?!"

I do this ALL the time, constantly marvelling at any milestone or achievement, however small because the other thing having a child with a disability means to me, is NEVER forgetting just how close I came to losing him and also those terrible meetings with frowning doctors after he was born warning us of what the future would bring.

I really believe every day with my son is a miracle.

Elias is a gorgeous boy. I love to see how beautifully he is growing up.

10/11/2008 4:44 AM CDT

liz.ullery1 wrote:
Wow. Perfect.

My brother has Ds and I should print this off for my Mom.

Thank you.

10/12/2008 12:05 AM CDT

Following Elias wrote:
Nelba, I can see how that same statement can be said so differently--and how those of us on the inside of the world of special needs know that more often it is changed for the better.

Dianne, thanks for adding that it also means always remembering the miracle of our kids' precious lives, especially after they surpass the expectations of frowning docs.

And Liz, please feel free to print and share with your mom. Thanks for writing.
10/12/2008 8:35 PM CDT

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