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You know what I was thinking? That growth is hard. I know with my own three (n/t) kids that sometimes they are at their absolute crabbiest, worst and meanest before they make some kind of leap forward. Maybe the same thing is going on here?
In any case, I am very happy to have read this. May the sun shine from within, often, and very bright.

thank you for sharing this magical conversation. I'm rooting for all of you!

I hope you read this post again everytime Elias squeezes your face or uses his canes inappropriately. His kindness and empathy are in there somewhere....maybe just behind the clouds.

Oh.My throat is tight with trying to hold back tears. This is so exquisite, so glorious. I'm kvelling for you, for Elias. Hugs.

This put some sun in my day!

What a wonderful post. I'm not sure how I found your blog, and I don't think I have posted before, but I read your entire blog backwards when I did find it. I am raising a neuro typical almost 7 year old and found a lot of wisdom and familiarity in your posts.
I laughed when you said Elias handed you what you thought was his garbage. I recently started telling my son that I save all his garbage for posterity, so what he gave me today would go in his 6 year old garbage. He gets the joke. So now when he gives me some, I thank him for saving it. Hopefully he will get the message soon and discard it himself!
Glad you had a good day.

Kinda hard not to root for the clouds when Elias is on that team! What a fantastic conversation! Aren't kids cool?

When I send notes home about speech sessions with my students, I try to include anything I think their parents might smile to read, especially when those moments seem harder to find. Now, thanks to you, I will think of them as stars for their pockets. And mine too!

So glad to read this. Beautiful capturing of this moment. Felt like I was there. Hold onto it!!!

Beautiful writing! Have you ever submitted your writing to The Sun? Are you familiar with that literary journal? I think you might like it. You style and tone would fit in. Thanks for your honesty and passion and for looking at the hard things as well as the light!


Gosh, reading all your comments now, for a second time, I'm so honored by your responses. Thank you.

Sally, I read The Sun regularly, have for years, and I have submitted two essays to them which were not accepted but it is a goal of mine to be published in there someday. I just need to take the time and I need to remember that each rejection is not a final judgement on my ability to write.

Lisa, I love that you send home notes about your speech sessions. One of the benefits of working at Elias's school is when teachers tell me things he did or said. Well, the positive moments at least:)

Linda, thanks for writing for the first time and for letting me know you went back and read all my old posts. I also have a dream of turning this blog into a book someday so hearing that helps with my motivation. Ah, but then there's the whole time thing again...
And I'm glad I told have the only child who thinks his parent is his own personal trash can.

And Danielle, I like your theory and hope its true, that we will see more sunshine and less clouds as he grows into this next stage.

And yes, i will try to remember this moment and all your comments the next time he tries to hit me with his canes...

Hi Elias

My name is Jenna. You are a brave courageous fighter. you are a special miracle from god, a gift from above, earthly angel,and you are a smilen hero. You are full of happiness, life, smiles, joy, fun,love, and spunk.

That's awesome about the playground built for all abilities. It awesome what your family is dooing. I bet it will look really cool and it will be very fun when it is built.

I was born with a rare life threatening disease, and have 14 other medical conditions, and developmental delays.

I wrote this poem

Each of us are Special

Each of us different,

No one is the same

Each of are us are unique in our own way,

Those of us who have challenges, we smile through our day.

Those who of us who have challenges, we smile through our day.

It doesn't matter what others say

we are special anyway.

What is forty feet and sings? the school chior

Wonderful story. Will keep some of your thoughts in my pockets.


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